The Adoration of the Christ Child

The Adoration of the Christ Child
See if you can spot why I like this image

Everything in its Right Place

A blog about disability, life, parenting, and learning what it means to live well in this world.

Sunday, July 8, 2012

Apologies for the long absence...all is well in the Brock household. 

We passed June in a bit of a blur, enjoying a visit from cousins, aunts, uncles and Oma and Papa from Texas. It was nice getting to show them all around our home city and introduce them to our favourite coffee shop, our church, our routines and of course: to Agnes! She fit right in with the crew and loved all the attention from her female cousins. She is 16 months going on 16 to be sure!

It was nice to be so pleasantly distracted in what is usually a very busy time of year for Brian and I. However, we did not overlook the one year anniversary of Adam's diagnosis on June 16. It was pouring with rain, as was "that day" one year ago, but the similarities stopped there. Adam had a great day and we spent it all together, which was what we were robbed of last year. In actual fact, I found his Leukaemia diagnosis much harder to deal with than his other diagnoses, mainly because it was, and still is, more life-threatening than his Down Syndrome or his Autism. It also changed life from what was normal, albeit different and difficult at times, to something abnormal, something frightening.

We are now one year on, and life is normal again, not that it hasn't changed significantly. We still give medicines every morning and evening, including chemotherapy. Once a month he goes in for an infusion and then has five days of steroids that throw our routine off a bit. But overall Adam is back, he is happy and energetic and full of life. He has weathered the storm and continues to grow, learn, communicate, be mischievous, and thrive. 

Here he is watching the "Race for Life" in Aberdeen on July 1. This year, as with last year, our friend Chioma ran with Adam's picture glued to her back, in honour of him and his fight against cancer--along with SO MANY other friends, family, and friends of friends who have and are fighting against it too. It was a pleasure to walk with him to and from the race this year, as last year he couldn't walk and had to ride in the buggy the whole time. Even the rain couldn't dampen our enthusiasm!!

The whole gang watching the runners--funny that the only one in short sleeves is the Texan! :)

Lovely Oma and her Scotland grandkids on the way home...surprised to have caught everyone looking at the camera for once!

Adam and sister swinging at the park--the love and care he shows for her is amazing. All the kids interact really well, but Agnes has brought out a nice, sweet side of Adam for sure.

We spent this weekend doing lots of walking in the forest--yesterday in the rain, today in the warm cloudy weather. It is good therapy for a mostly city-bound mum and dad. Adam walked really well which made me think again of how far we've come from the chemo-riddled boy of last year. Agnes found and played with a spider for a LONG time today (yuk!) which kept her entertained while the boys and I took an extra loop over the hill together to meet her and Daddy. I am grateful for this time, for this summer that holds the promise of long days to walk and play and be out--not cooped up in the hospital like last summer. It makes me want to celebrate every day, both how much the kids put up with last year and how much freedom we have this year by comparison. And we will--another pleasure of this year is having residency and the financial boost of receiving benefits from the state for the first time ever. If we spend every last pence on ice cream and coffee, so be it! ;) 


Andy said...

Hurray for residency! Go eat that soft Mr Whippy on the beach front!

Mindy Price said...

Thanks for the updates, Steph, and all the lovely photos. What a year this has been for you all. Hooray for a new year, for new energy for Adam, for visits from family, for long-awaited residency. Our love to you five!

jeileenbaylor said...

Sweet Post! So glad to hear what is going on and that Adam is doing so well after a year! Sounds like you all have been having a fun summer :)